A National Registry of Thalassemia in Turkey: Demographic and Disease Characteristics of Patients, Achievements, and Challenges in Prevention

AYDINOK, Yesim; OYMAK, Yesim; ATABAY, Berna; AYDOĞAN, Gonul; YESİLİPEK, Akif; ÜNAL, Selma; KILINÇ, Yurdanur; Oflaz, Banu; AKIN, Mehmet; VERGİN, Canan; Evim, Melike; ÇALIŞKAN, Umran; Unal, Sule; BAY, Ali; Kazanci, Elif; Ileri, Talia; ATAY, Didem; PATIROĞLU, Turkan; KAHRAMAN, Selda; SÖKER, Murat; AKCAN, Mediha; AKDENİZ, Aydan; BÜYÜKAVCI, Mustafa; Alanoglu, Emine; BÖR, Ozcan; SOYER, Nur; Karadas, Nihal; UYSALOL, Ezgi; TÜRKER, Meral; AKÇAY, Arzu; OCAK, Suheyla; GÜNEŞ, Adalet; TOKGÖZ, Huseyin; Unal, Elif; Tiftik, Naci; KARAKAŞ, Zeynep

doi:10.4274/tjh.2017.0039

A National Registry of Thalassemia in Turkey: Demographic and Disease Characteristics of Patients, Achievements, and Challenges in Prevention

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AYDINOK Y., OYMAK Y., ATABAY B., AYDOĞAN G., YESİLİPEK A., ÜNAL S., ...More

TURKISH JOURNAL OF HEMATOLOGY, vol.35, no.1, pp.12-18, 2018 (SCI-Expanded)

Publication Type: Article / Article
Volume: 35 Issue: 1
Publication Date: 2018
Doi Number: 10.4274/tjh.2017.0039
Journal Name: TURKISH JOURNAL OF HEMATOLOGY
Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Scopus, TR DİZİN (ULAKBİM)
Page Numbers: pp.12-18
Süleyman Demirel University Affiliated: Yes

Abstract

Objective: The Turkish Society of Pediatric Hematology set up a National Hemoglobinopathy Registry to demonstrate the demographic and disease characteristics of patients and assess the efficacy of a hemoglobinopathy control program (HCP) over 10 years in Turkey.